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  • About Us
  • What is a Seizure Action Plan?
  • Awareness Week
  • Patient & Family Stories
  • Info for Families
  • Info for Healthcare Providers
  • Seizure Safety at School or Work
  • Back to School Checklist
  • Resources from our Partners
  • Citations
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Patient & Family Stories

Everyone has a story and there is a power in sharing them. Thank you to our families for sharing the patient voice and their experience on the importance of establishing an individualized SAP for seizure emergencies.

If you would like to share your story, please email us: [email protected].

  • Having a Plan Helps Us Control the Uncontrollable, Day In and Day Out

    Tayla and Brian

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    Brian, a child with daily seizures, required several hospital visits, but after following multiple seizure action plans, he’s on the road to recovery.

    “I follow the seizure action plan every time.”

    Read the full story

  • Traveling With Our Daughter Thanks to a Seizure Action Plan

    Kim & Kai

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    Knowing that paramedics and ER staff will quickly understand how best to treat their daughter, Kai’s seizure action plan allows her to travel with her parents.

    “The seizure action plan letter works and saves time to treatment for seizure emergencies.”

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  • How a Powerful Piece of Paper Helps Our Son Live with Seizures

    Karen and Dan

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    With a seizure action plan, Dan’s parents, caretakers, and emergency responders are all on the same page, resulting in fewer injuries and fewer trips to the hospital.

    “We teach the team what to do, when to do it, and how to do it.”

    Read the full story

  • We Did the Wrong Thing Not Having a Formal Seizure Action Plan for Our Son

    Jen & Theo

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    Despite having an intuitive plan, when their son Theo had a cluster of seizures, they hesitated on how to handle the situation best.

    “We didn’t have a Seizure Action Plan before, but we do now!”

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  • I Now Know How Much a Seizure Action Plan Could Have Helped Me

    Heidi

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    After 40 years, Heidi is learning, despite being surrounded by well-prepared family and friends, that a formal seizure action plan can save her life one day.

    “A prepared seizure action plan and a willingness to ask for help may only mean carrying the comprehensive document with me on my adventures.”

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  • Living Life to the Fullest with the Help of a Seizure Action Plan

    Emily & Teddy

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    For Teddy, a boy with Lennox-Gastaut Syndrome, multiple daily seizures are unavoidable, but being prepared with a seizure action plan makes all the difference.

    “Seizures can be scary and unexpected, but we are ready and have a plan for it.”

    Read the full story

  • When it Comes to Seizures, There’s No Such Thing as Being Over-Prepared

    Elizabeth & Spencer

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    Her seizure action plan helps everyone prepare for any scenario, no matter where Spencer is, keeping her away from unnecessary and risky hospital visits.

    “Thankfully, I have a printout of my seizure emergency plan!”

    Read the full story

  • Why I Tell Everyone About My Seizures and What to Do When They Happen

    Alison & Preston

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    Seizures have affected Alison for years, but sharing her action plan with her friends and family brings clarity and comfort when it's needed most.

    “Others genuinely appreciate being prepared and knowing what to do should I have a seizure.”

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  • Who Do I Share My Seizure Action Plan With? - DeJah

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  • What Do I Include in my Seizure Action Plan? - DeJah

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  • Why I have a Seizure Action Plan: Dara

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  • Why I Have a Seizure Action Plan: Danielle

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  • Why My Seizure Action Plan is Important: Amber

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  • Seizure Action Plan - Why We have one for our Child with Epilepsy - a Mother's Perspective

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© Copyright | Seizure Action Plan Coalition | All Rights Reserved

This website was made possible through educational grants from our partners Neurelis and UCB. All website content was created exclusively by the SAP Coalition advocacy partners. Information on this site is not intended to be medical advice or to promote any specific medical device or product.

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