About Us

Seizure Action Plan Coalition

The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity to bring the epilepsy community together to bring attention and awareness to Seizure Action Plans for people with epilepsy. The three organizations served as the Governing Organizations of the coalition through 2022.

Epilepsy Alliance America became the managing organization of the Seizure Action Plan Coalition on January 1, 2023. We are committed to continuing this important work and expanding the reach and impact of the Coalition.

JOIN US!
Save the Dates for Seizure Action Plan Awareness Week coming up February 9 – 16, 2026.

Managing Organization

Founding Organizations

Awareness Partners

Become an Official Awareness Partner

We are thrilled to invite all patient advocacy organizations, health care providers, hospitals/epilepsy centers and other interested parties to join the Seizure Action Plan Coalition as an Official Awareness Partner.

Together we can ensure that everyone with epilepsy knows what a Seizure Action Plan is and how to create and use one!

We ask Awareness Partners to participate in Seizure Action Plan Awareness Week in February by actively posting content as well as engaging with content posted by the Seizure Action Plan Coalition.

In return, awareness partners will:

– Be kept up to date on the latest developments
– Be sent the toolkit for awareness efforts
– Have their logos placed on the Seizure Action Plan Coalition website
– Be listed in Seizure Action Plan Coalition’s press releases
– Have the opportunity to submit patient stories and testimonials to be featured on the Seizure Action Plan Coalition website

We hope you will join this important effort!