SAP Coalition

In 2020, the Seizure Action Plan (SAP) Coalition was formed by the Dravet Syndrome Foundation, the Lennox-Gastaut Syndrome Foundation, and the TSC Alliance to fill an unmet need in the epilepsy community.

This collaborative effort is designed to raise awareness of what a Seizure Action Plan (SAP) is; the importance of a SAP in the health management of those with epilepsy; and resources to develop an individualized SAP. While our three organizations have done the initial work to get this project off the ground, we have done so with the plan to expand it out to all of our fellow advocacy organizations who work in the epilepsy space.


Governance Committee