About Us

Seizure Action Plan Coalition

The Seizure Action Plan Coalition began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity to bring the epilepsy community together to bring attention and awareness to Seizure Action Plans for people with epilepsy. The three organizations served as the Governing Organizations of the coalition through 2022.

Epilepsy Alliance America became the managing organization of the Seizure Action Plan Coalition on January 1, 2023. We are committed to continuing this important work and expanding the reach and impact of the Coalition.

JOIN US!
Seizure Action Plan Awareness Week 2026 is February 9 – 16, 2026.

Managing Organization

Founding Organizations

Awareness Partners

Scroll above to see all of our Awareness Partners, or click below.

American Brain Coalition / Sami Alert / Angelman Syndrome Foundation / Angels of Epilepsy / Anita Kaufman Foundation / ARMS / Better Future 4 U / CACNA1A Foundation / CDLK5 in Color Podcast / Child Neurology Foundation / Children’s Brain Institute / Chloe’s Fight with Photosensitive Epilepsy / CSNK2A1 Foundation / CureGRIN Foundation / CVINow.org at the CVI Center at Perkins / Danny Did Foundation / Defeating Epilepsy Foundation / Dravet Syndrome Foundation / Dup15qAlliance / Epilepsy Advocacy Network / Epilepsy Alliance America / Epilepsy Alliance Florida / Epilepsy Alliance Louisiana / Epilepsy Alliance North Carolina / Epilepsy Alliance Ohio / Epilepsy Alliance West Central New York / Epilepsy Association / Epilepsy Association Ohio / Epilepsy Association of Western and Central PA / Epilepsy Foundation of America / Epilepsy Foundation of Kentuckiana / Epilepsy Foundation of East Tennessee / Epilepsy Information Service of Wake Forest School of Medicine / Epilepsy Reach Foundation / Epilepsy Services Foundation / Epilepsy Services of New Jersey / Epilepsy Support Network of Orange County / Epitome of Epilepsy Eric’s Corner / FamilieSCN2A Foundation / FundHemi / FND Hope USA / GRIN2B Foundation / Gulf Coast Epilepsy Alliance / hom neuro /Hope for HIE / IFCR: International Foundation for CDKL5 Research / International SCN8A Alliance/DEE-P Connections / JoshProvides – Epilepsy Assistance Foundation / KCNA2 Epilepsy Global Connection / KIF1A.ORG / Koolen-de Vries Syndrome Foundation / Landon’s Legacy Foundation / Legacy Bridges Foundation / LGS Foundation / Live Life with Zest / Living Well with Epilepsy / Malan Syndrome Foundation / Marvelous Kids Epilepsy / Marvelous Kids Epilepsy Foundation / Milo&Me Inc. / Neureka / Paul’s Purple Warriors / Pediatric Epilepsy Surgery Alliance / Phelan-McDermid Syndrome Foundation / Project 8p Foundation / Project CASK / Purple Peace Foundation / Rare Epilepsy Network / Ring14USA/ Sail For Epilepsy / Seizetheday – CaleighFarrar / Sociedad Puertorriquena de Epilepsia / South Carolina Advocates for Epilepsy / Steunpunt Kinderepilepsie / STXBP1 Foundation / TBC1D24 Foundation / Tess Research Foundation / The Cameron Boyce Foundation / The Connected Parent / The Cute Syndrome Foundation / The Epilepsy Center of Northwest Ohio / The Little Friends of Epilepsy Organization / The Sturge-Weber Foundation / Treffpunkt Epilepsie Ludwigsburg – SHG Lubu /TSC Alliance / Valley Children’s Healthcare – Epilepsy Support Program / Young Adults with Epilepsy

Become an Official Awareness Partner

We are thrilled to invite all patient advocacy organizations, health care providers, hospitals/epilepsy centers and other interested parties to join the Seizure Action Plan Coalition as an Official Awareness Partner.

Together we can ensure that everyone with epilepsy knows what a Seizure Action Plan is and how to create and use one!

We ask Awareness Partners to participate in Seizure Action Plan Awareness Week in February by actively posting content as well as engaging with content posted by the Seizure Action Plan Coalition.

In return, awareness partners will:

– Be kept up to date on the latest developments
– Be sent the toolkit for awareness efforts
– Have their logos placed on the Seizure Action Plan Coalition website
– Be listed in Seizure Action Plan Coalition’s press releases
– Have the opportunity to submit patient stories and testimonials to be featured on the Seizure Action Plan Coalition website

We hope you will join this important effort!