Seizure Action Plan Awareness Week is a dedicated time to raise awareness about seizure safety, preparedness, and the importance of having a clear plan in place when communication is not possible.
This toolkit is designed for people living with epilepsy, caregivers, educators, school staff, clinicians, and community partners who want practical, shareable resources that support safer seizure response in real-life settings.
Inside, you will find ready-to-use digital assets and guidance to help start conversations, reinforce preparedness, and share accurate information across your networks.
For questions or to contribute resources to the campaign, contact [email protected] or visit SeizureActionPlans.org.
How to Use This Toolkit
This toolkit is a flexible resource hub that allows you to download, customize, and share materials in ways that best fit your audience and platform.
The toolkit includes:
Social media graphics and videos optimized for Instagram, Facebook, LinkedIn, and TikTok, including feed posts and stories
Downloadable and customizable graphics that allow you to add your organization or school logo
Short form video content to support awareness and education across social platforms
A downloadable discussion guide to help individuals, families, schools, and workplaces navigate conversations about seizure safety and preparedness
Suggested messaging and themes aligned with each day of Seizure Action Plan Awareness Week
You are encouraged to share these materials throughout the week, adapt them to your audience, and use them as conversation starters in classrooms, workplaces, healthcare settings, and online communities.
When more people understand what to do during a seizure, responses are safer, faster, and more confident. Preparedness starts with a plan.
Seizure Action Plan Awareness Week LIVE Webinars!
Seizure Detection Devices 101
We’re partnering with the Danny Did Foundation to host Seizure Detection Devices 101, a practical webinar focused on the fundamentals of seizure detection technology.
This session will explore how detection tools work, who they can support, and how detection technology fits into seizure action planning and overall safety. It’s designed for caregivers, clinicians, educators, and individuals living with epilepsy.
We’re hosting a live Seizure Recognition & Response Training led by Jason Raether, MSN, RN, a dedicated school nurse and a person living with epilepsy. His dual perspective brings both professional expertise and lived experience, making this session especially meaningful for caregivers, educators, and anyone who wants to be prepared to help.
Friday, February 13, 202611 AM EST / 10 AM CST
Let’s build safer, more informed communities together during Seizure Action Plan Awareness Week.
Monday, February 9th – What Is A Seizure Action Plan?
Post Option 1: Core Definition
A Seizure Action Plan is a written, personalized guide that explains what others should do before, during, and after a seizure. During a seizure, a person may not be able to speak or communicate. The plan removes guesswork and helps family members, friends, coworkers, teachers, and caregivers respond calmly and correctly.
➡️ Learn more, download a plan, and visit seizureactionplans.org. Please share this post to help others be prepared.
#SAPAW2026 #SeizureActionPlans
Good for: General audience, people with epilepsy, caregivers, school personnel
Un Plan de Acción para Convulsiones es una guía escrita y personalizada que explica qué deben hacer otras personas antes, durante y después de una convulsión. Durante una convulsión, una persona puede no poder hablar o comunicarse. El plan elimina las dudas y ayuda a responder con calma y seguridad.
➡️ Obtenga más información, descargue un plan y visite seizureactionplans.org. Comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Público general, personas con epilepsia, cuidadores, personal escolar
Seizures can happen anytime, anywhere. A Seizure Action Plan outlines seizure first aid, when to call 911, rescue medication instructions, and emergency contacts. Because communication may not be possible during a seizure, having this information ready helps others step in without hesitation.
➡️ Review your plan at seizureactionplans.org and share this post.
#SAPAW2026 #SeizureActionPlans
Good for: Caregivers, school personnel, clinicians, general audience
Las convulsiones pueden ocurrir en cualquier momento y lugar. Un Plan de Acción para Convulsiones describe primeros auxilios, cuándo llamar al 911, medicamentos de rescate y contactos importantes. Como la comunicación puede no ser posible, esta información ayuda a actuar sin dudar.
➡️ Revise su plan en seizureactionplans.org y comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Cuidadores, personal escolar, profesionales de la salud, público general
Not every seizure is a medical emergency, but every seizure deserves the right response. A Seizure Action Plan clearly outlines when to call 911 and when supportive care is enough. That clarity helps reduce panic and keeps the person having a seizure safer.
➡️ Learn more at seizureactionplans.org and share this post to reduce confusion.
#SAPAW2026 #SeizureActionPlans
Good for: General audience, caregivers, school personnel, clinicians
No todas las convulsiones son una emergencia médica, pero todas merecen la respuesta correcta. Un Plan de Acción para Convulsiones aclara cuándo llamar al 911 y cuándo el cuidado de apoyo es suficiente. Esa claridad ayuda a reducir el pánico y mantiene a la persona más segura.
➡️ Obtenga más información en seizureactionplans.org y comparta esta publicación para reducir la confusión.
#SAPAW2026 #SeizureActionPlans
Bueno para: Público general, cuidadores, personal escolar, profesionales de la health
Video: Kelly R. Conner, Preventing Unnecessary ER Visits
Kelly R. Conner, PhD, PA-C discusses how Seizure Action Plans can help prevent unnecessary emergency room visits by clarifying when emergency care is needed and how to respond with rescue medications and other therapies. Atrium Health Wake Forest Baptist.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, clinicians, school personnel
Kelly R. Conner, PhD, PA-C explica cómo los Planes de Acción para Convulsiones pueden ayudar a prevenir visitas innecesarias a la sala de emergencias al aclarar cuándo se necesita atención médica de urgencia y cómo responder con medicamentos de rescate y otras terapias. Atrium Health Wake Forest Baptist.
➡️ Vea el video y visite seizureactionplans.org.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, profesionales de la salud, personal escolar
Jordan walks through the key sections of a Seizure Action Plan and explains what information it includes. Understanding what’s in your plan helps others respond quickly and safely during a seizure.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, educators, clinicians
Tuesday, February 10th – Who Knows About Your Seizure Action Plan?
Post Option 1: Sharing the Plan
A Seizure Action Plan only works if the right people have access to it. When a seizure happens, the person may not be able to communicate. Sharing the plan ahead of time ensures others know what to do without panic or delay.
➡️ Visit seizureactionplans.org and share this post with someone who should have access.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, school personnel, general audience
Un Plan de Acción para Convulsiones solo funciona si las personas adecuadas tienen acceso. Compartir el plan con anticipación evita pánico y demoras.
➡️ Visite seizureactionplans.org y comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, personal escolar, público general
Video: Seizure Action Plans, Caregivers and School
Becca shares why she has a Seizure Action Plan for her son. If a seizure happens, knowing the people around him are prepared brings peace of mind at school and beyond.
➡️ Watch, learn, and visit seizureactionplans.org. Please share this video.
#SAPAW2026 #SeizureActionPlans
Good for: Caregivers, school personnel, educators
Becca comparte por qué tiene un Plan de Acción para Convulsiones para su hijo. Saber que otros están preparados brinda tranquilidad.
➡️ Vea el video y visite seizureactionplans.org. Comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Cuidadores, personal escolar, educadores
Video: Austin, Should I Bring My Seizure Action Plan to School or Work
Austin explains why bringing your Seizure Action Plan to school or work is an important part of seizure preparedness. Sharing your plan helps teachers, coworkers, and supervisors respond safely and confidently if a seizure occurs.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizurePreparedness
Good for: Students, employees, caregivers, educators, employers
Video: Austin, Who Should Have My Seizure Action Plan
Austin discusses who should have access to your Seizure Action Plan and why it matters. From family and friends to coworkers and trusted supports, sharing your plan helps others respond appropriately during a seizure.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, families, coworkers
Video: How Couples Can Discuss Seizure Action Plans
Danielle, a person with epilepsy, and Phil, a partner of a person with epilepsy, share how couples can start meaningful conversations about Seizure Action Plans.
Open communication helps build understanding, confidence, and shared preparedness in everyday life and during emergencies.
Video: Using the Seizure Action Plan Discussion Guide
This video shows how couples can use the Seizure Action Plan Discussion Guide to start thoughtful, supportive conversations about seizure preparedness.
The guide helps turn a difficult topic into a clear, shared plan that supports communication, understanding, and readiness.
Wednesday, February 11th – Seizure Safety on the Go
Post Option 1: Public Safety
Seizures do not only happen at home. In public settings, a person having a seizure may not be able to communicate. Medical IDs and digital Seizure Action Plans help others respond correctly.
➡️ Learn more at seizureactionplans.org and share this post.
#SAPAW2026 #SeizureActionPlans
Las convulsiones no ocurren solo en el hogar. En espacios públicos, la persona puede no poder comunicarse. Las identificaciones médicas ayudan a responder correctamente.
➡️ Visite seizureactionplans.org y comparta esta publicación.
Stephanie shares why she has a Seizure Action Plan. During a seizure, she may not be able to communicate. Her plan clearly outlines what others should do, helping keep her safe and removing guesswork.
➡️ Watch, learn, and visit seizureactionplans.org. Please share this video to help spread the message.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, general audience, clinicians
Stephanie comparte por qué tiene un Plan de Acción para Convulsiones. Durante una convulsión, puede no poder comunicarse. Su plan deja claro qué deben hacer otras personas, ayudando a mantenerla segura.
➡️ Vea el video y visite seizureactionplans.org. Comparta este video.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, público general, profesionales de la salud
Kelly R. Conner, PhD, PA-C explains why one of the biggest travel related risks for someone with epilepsy is not having a Seizure Action Plan available.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, clinicians, general audience
Kelly R. Conner, PhD, PA-C explica por qué uno de los mayores riesgos al viajar para una persona con epilepsia es no llevar consigo un Plan de Acción para Convulsiones.
El plan también puede ayudar a reducir tratamientos inadecuados y pruebas innecesarias.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, profesionales de la salud, público general
Video: Jordan — What to Do (and Not Do) During a Seizure
Jordan walks through the essential do’s and don’ts for responding to a seizure. Knowing what actions help — and which ones to avoid — can reduce the risk of injury and support a safer response in the moment.
Learn more and access seizure action plan resources at seizureactionplans.org.
#SAPAW2026 #SeizurePreparedness
Good for: General audiences, caregivers, teachers, coworkers
This video highlights how medical IDs can share critical information during an emergency and help others respond appropriately when someone cannot speak for themselves.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizurePreparedness
Good for: People with epilepsy, caregivers, first responders, general audience
Video: Apple Medical ID, Seizure Preparedness on the Go
Learn how Apple Medical ID stores important health information on your phone and why it’s a helpful part of seizure preparedness when you’re on the go.
➡️ Watch, learn, and visit seizureactionplans.org.
#SAPAW2026 #SeizurePreparedness
Good for: People with epilepsy, caregivers, teens, young adults
Thursday, February 12th – Rescue Medications - Part of your Seizure Action Plan and important Travel Tips
Post Option 1: Rescue Med Basics
Rescue medications can stop or shorten certain seizures, but only if others know when and how to use them. A Seizure Action Plan spells this out clearly.
➡️ Watch, learn, and visit seizureactionplans.org to feel more prepared. Pass this along to someone who should know.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, general audience
Los medicamentos de rescate funcionan solo si otros saben cómo usarlos. Un Plan de Acción para Convulsiones deja estos pasos claros.
➡️ Visite seizureactionplans.org para aprender más y sentirse preparado. Comparta este mensaje con alguien que lo necesite.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, público general
Kelly R. Conner, PhD, PA-C reviews key considerations for rescue medications, including when to administer them,
how they are given, and why it is important to document where the medication is stored so others can find it
quickly in an emergency.
Rescue medications should always be kept with you. They are only helpful if they are accessible when they are
needed.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, caregivers, school personnel, clinicians
Kelly R. Conner, PhD, PA-C repasa consideraciones clave sobre los medicamentos de rescate, incluyendo cuándo
administrarlos, cómo se administran y por qué es importante documentar dónde se guardan para que otras personas
puedan encontrarlos rápidamente en una emergencia.
Los medicamentos de rescate deben llevarse siempre consigo. Solo son útiles si están disponibles cuando se
necesitan.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, cuidadores, personal escolar, profesionales de la salud
Friday, February 13th – Why I Have a Seizure Action Plan – Testimonials
Post Option 1: Peace of Mind
A Seizure Action Plan is more than a piece of paper. It is peace of mind.
When a seizure happens, many people cannot explain what they need in that moment. A plan speaks for them and helps the people nearby know exactly what to do.
Alison shares how her Seizure Action Plan reduces fear and confusion and helps avoid delays in care. Knowing others understand how to respond makes her feel safer wherever she is.
➡️ Watch, learn, and visit seizureactionplans.org. Please share this video to help spread the message.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, general audience
Un Plan de Acción para Convulsiones es más que un documento. Es tranquilidad.
Cuando ocurre una convulsión, muchas personas no pueden explicar lo que necesitan. El plan lo hace por ellas y ayuda a que otros sepan cómo responder.
Alison comparte cómo su plan reduce el miedo y la confusión y evita demoras en la atención.
➡️ Vea el video y visite seizureactionplans.org. Comparta este mensaje.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, público general
A Seizure Action Plan exists because seizures do not wait for the right moment.
When communication is not possible, clear steps matter. A plan means fewer questions, less panic, and a safer response in a moment that counts.
Families, caregivers, and people with epilepsy share how having a plan helped during real-life emergencies. Your story could help someone else take the first step.
➡️ Learn more or create a plan at seizureactionplans.org. Please share this post.
#SAPAW2026 #SeizureActionPlans
Good for: General audience, caregivers, clinicians
Un Plan de Acción para Convulsiones existe porque las convulsiones no esperan.
Cuando no es posible comunicarse, los pasos claros hacen la diferencia.
Familias, cuidadores y personas con epilepsia comparten cómo un plan los ayudó en situaciones reales.
➡️ Obtenga más información o cree un plan en seizureactionplans.org. Comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Público general, cuidadores, profesionales de la salud
Talking about SUDEP can feel overwhelming, but planning does not have to be. A Seizure Action Plan supports a safer seizure response, clearer monitoring, and informed decision-making. All of these help create a stronger safety net for people living with epilepsy.
➡️ Learn more and visit seizureactionplans.org. Please share this important reminder.
#SAPAW2026 #SeizureActionPlans
Good for: Clinicians, caregivers, epilepsy community
Hablar sobre SUDEP puede ser difícil, pero planificar no tiene que serlo. Un Plan de Acción para Convulsiones apoya respuestas más seguras y decisiones informadas.
➡️ Obtenga más información en seizureactionplans.org y comparta este recordatorio.
#SAPAW2026 #SeizureActionPlans
Bueno para: Profesionales de la salud, cuidadores, comunidad de epilepsia
Epilepsy isn’t rare. And it isn’t always dramatic. For many people, it looks like everyday preparation.
The real risk isn’t always the seizure. It’s not knowing how to respond.
A Seizure Action Plan helps ensure people respond with care instead of panic. It provides clear guidance in moments when communication may not be possible and offers peace of mind for individuals, families, and caregivers.
#SAPAW2026 #SeizureActionPlans
Good for: General audience, people with epilepsy, caregivers, clinicians, workplaces, schools
Saturday, February 14th – Build a Plan That Works for You
Post Option 1: Valentine’s Day
This Valentine’s Day, we’re sharing what we really love.
We ❤️ Seizure Action Plans. They take the guesswork out of seizure response when someone cannot communicate and help the people around them know exactly what to do.
➡️ Share the love. Visit seizureactionplans.org to start or update a plan.
#SAPAW2026 #SeizureActionPlans
Este Día de San Valentín, compartimos lo que realmente amamos.
Amamos los Planes de Acción para Convulsiones ❤️ Eliminar las dudas cuando una persona no puede comunicarse y ayudan a que otros sepan exactamente qué hacer.
➡️ Comparta el amor. Visite seizureactionplans.org para comenzar o actualizar un plan.
The best Seizure Action Plan is one that fits your real life.
Work, school, dating, travel. Your plan should reflect where you go and who is around you, especially because during a seizure, you may not be able to explain what you need. A plan makes sure the right steps are already in place.
➡️ Start or customize your plan at seizureactionplans.org. Please share this post.
#SAPAW2026 #SeizureActionPlans
Good for: People with epilepsy, general audience
El mejor Plan de Acción para Convulsiones es el que se adapta a su vida real.
Trabajo, escuela, citas, viajes. Durante una convulsión, muchas personas no pueden comunicarse. El plan deja claros los pasos antes de que ocurra una emergencia.
➡️ Comience o personalice su plan en seizureactionplans.org. Comparta esta publicación.
#SAPAW2026 #SeizureActionPlans
Bueno para: Personas con epilepsia, público general
A Seizure Action Plan should work for you and the people around you.
Taking time to review your plan, update it when things change, and share it with caregivers or school staff helps ensure a safer response when communication is not possible. Support starts with a plan.
➡️ Review or update your plan at seizureactionplans.org and share this reminder.
#SAPAW2026 #SeizureActionPlans
Good for: Caregivers, school personnel
Un Plan de Acción para Convulsiones debe funcionar para usted y para quienes lo rodean.
Revisarlo, actualizarlo y compartirlo con cuidadores o personal escolar ayuda a garantizar una respuesta segura cuando no es posible comunicarse.
➡️ Revise o actualice su plan en seizureactionplans.org y comparta este recordatorio.
There is no one-size-fits-all Seizure Action Plan.
The best plan takes into account seizure types, medications, and daily routines. When a seizure happens, and the person cannot speak, a personalized plan helps others respond in the way that is right for them.
➡️ Learn more and explore planning tools at seizureactionplans.org. Please share this post.
#SAPAW2026 #SeizureActionPlans
Good for: Clinicians, caregivers
No existe un Plan de Acción para Convulsiones único para todos.
El mejor plan refleja los tipos de convulsiones, los medicamentos y la vida diaria. Cuando la persona no puede hablar, un plan personalizado guía a los demás a responder correctamente.
➡️ Obtenga más información en seizureactionplans.org y comparta esta publicación.
Seizure Action Plan Awareness Week Official LogoSeizure Action Plan Awareness Week White LogoSeizure Action Plan Coalition LogoSAPC Awareness Partner BadgeSAPC Provider Partner Badge
Downloadable Discussion Guide
Sharing Your Seizure Action Plan
When a seizure happens, the person experiencing it may not be able to communicate their needs.
A Seizure Action Plan provides clear, written instructions so others know exactly what to do
without delay or confusion.
This discussion guide is designed to help people living with epilepsy, caregivers, and families
confidently share a Seizure Action Plan with the individuals who need to know.
Use this guide to promote understanding, improve communication, and ensure that the right people
are prepared to respond when it matters most.
Note: This Discussion Guide is currently available in English only.
We are thrilled to invite all patient advocacy organizations, health care providers, hospitals/epilepsy centers and other interested parties to join the Seizure Action Plan Coalition as an Official Awareness Partner.
Together we can ensure that everyone with epilepsy knows what a Seizure Action Plan is and how to create and use one!
We ask Awareness Partners to participate in Seizure Action Plan Awareness Week in February by actively posting content as well as engaging with content posted by the Seizure Action Plan Coalition.
In return, awareness partners will:
– Be kept up to date on the latest developments – Be sent the toolkit for awareness efforts – Have their logos placed on the Seizure Action Plan Coalition website – Be listed in Seizure Action Plan Coalition’s press releases – Have the opportunity to submit patient stories and testimonials to be featured on the Seizure Action Plan Coalition website
