Seizure Action Plan Awareness Week 2026

Seizure Action Plan Awareness Week Toolkit

Seizure Action Plan Awareness Week is a dedicated time to raise awareness about seizure safety, preparedness, and the importance of having a clear plan in place when communication is not possible.

This toolkit is designed for people living with epilepsy, caregivers, educators, school staff, clinicians, and community partners who want practical, shareable resources that support safer seizure response in real-life settings.

Inside, you will find ready-to-use digital assets and guidance to help start conversations, reinforce preparedness, and share accurate information across your networks.

For questions or to contribute resources to the campaign, contact [email protected] or visit SeizureActionPlans.org.

Mobile phone mockup displaying a Seizure Action Plan on the screen, illustrating how seizure response information can be accessed digitally.

How to Use This Toolkit

This toolkit is a flexible resource hub that allows you to download, customize, and share materials in ways that best fit your audience and platform.

The toolkit includes:

  • Social media graphics and videos optimized for Instagram, Facebook, LinkedIn, and TikTok, including feed posts and stories

  • Downloadable and customizable graphics that allow you to add your organization or school logo

  • Short form video content to support awareness and education across social platforms

  • A downloadable discussion guide to help individuals, families, schools, and workplaces navigate conversations about seizure safety and preparedness

  • Suggested messaging and themes aligned with each day of Seizure Action Plan Awareness Week

You are encouraged to share these materials throughout the week, adapt them to your audience, and use them as conversation starters in classrooms, workplaces, healthcare settings, and online communities.

When more people understand what to do during a seizure, responses are safer, faster, and more confident. Preparedness starts with a plan.

Seizure Action Plan Awareness Week LIVE Webinars!
Graphic promoting Seizure Detection Devices 101 webinar in partnership with the Danny Did Foundation.

Seizure Detection Devices 101

We’re partnering with the Danny Did Foundation to host Seizure Detection Devices 101, a practical webinar focused on the fundamentals of seizure detection technology.

This session will explore how detection tools work, who they can support, and how detection technology fits into seizure action planning and overall safety. It’s designed for caregivers, clinicians, educators, and individuals living with epilepsy.

Monday, February 10, 2026
4 PM EST / 3 PM CST


Register here
Graphic promoting a live Seizure Recognition and Response Training during Seizure Action Plan Awareness Week.

Live Seizure Recognition & Response Training

We’re hosting a live Seizure Recognition & Response Training led by Jason Raether, MSN, RN, a dedicated school nurse and a person living with epilepsy. His dual perspective brings both professional expertise and lived experience, making this session especially meaningful for caregivers, educators, and anyone who wants to be prepared to help.

Friday, February 13, 2026 11 AM EST / 10 AM CST

Let’s build safer, more informed communities together during Seizure Action Plan Awareness Week.

Register here
Monday, February 9th – What Is A Seizure Action Plan?
Two people reviewing paperwork with text explaining what a Seizure Action Plan is and how it helps guide care during a seizure.

Post Option 1: Core Definition

A Seizure Action Plan is a written, personalized guide that explains what others should do before, during, and after a seizure. During a seizure, a person may not be able to speak or communicate. The plan removes guesswork and helps family members, friends, coworkers, teachers, and caregivers respond calmly and correctly.

➡️ Learn more, download a plan, and visit seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Good for: General audience, people with epilepsy, caregivers, school personnel

Download the graphic Customize this graphic

Post Option 2: What the Plan Covers

Seizures can happen anytime, anywhere. A Seizure Action Plan outlines seizure first aid, when to call 911, rescue medication instructions, and emergency contacts.

➡️ Review your plan at seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Download the graphic Customize this graphic

Post Option 3: When to Call 911

Not every seizure is a medical emergency, but every seizure deserves the right response. A Seizure Action Plan clearly outlines when to call 911.

#SAPAW2026 #SeizureActionPlans

Download the graphic Customize this graphic

Video: Stephanie, Updating Your Plan

Stephanie explains why a Seizure Action Plan should be a living document that changes as life changes.

#SAPAW2026 #SeizureActionPlans

Download the video
Tuesday, February 10th – Who Knows About Your Seizure Action Plan?

Post Option 1: Sharing the Plan

A Seizure Action Plan only works if the right people have access to it. When a seizure happens, the person may not be able to communicate. Sharing the plan ahead of time ensures others know what to do without panic or delay.

➡️ Visit seizureactionplans.org and share this post with someone who should have access.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, school personnel, general audience

Download the video
Graphic asking who would know what to do during a seizure, encouraging people to share their Seizure Action Plan.

Post Option 2: Who Would Know What to Do?

If a seizure happened today, would the people around you know what to do? A Seizure Action Plan makes sure clear instructions are already in place.

➡️ Learn more at seizureactionplans.org and share this post.

#SAPAW2026 #SeizureActionPlans

Good for: General audience, caregivers, school personnel

Download the graphic Customize this graphic

Video: Seizure Action Plans, Caregivers and School

Becca shares why she has a Seizure Action Plan for her son. If a seizure happens, knowing the people around him are prepared brings peace of mind at school and beyond.

➡️ Watch, learn, and visit seizureactionplans.org. Please share this video.

#SAPAW2026 #SeizureActionPlans

Good for: Caregivers, school personnel, educators

Download the video
Video cover image for Austin discussing bringing a Seizure Action Plan to school or work.

Video: Austin, Should I Bring My Seizure Action Plan to School or Work

Austin explains why bringing your Seizure Action Plan to school or work is an important part of seizure preparedness. Sharing your plan helps teachers, coworkers, and supervisors respond safely and confidently if a seizure occurs.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizurePreparedness

Good for: Students, employees, caregivers, educators, employers

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video
Video cover image for Austin explaining who should have a Seizure Action Plan.

Video: Austin, Who Should Have My Seizure Action Plan

Austin discusses who should have access to your Seizure Action Plan and why it matters. From family and friends to coworkers and trusted supports, sharing your plan helps others respond appropriately during a seizure.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, families, coworkers

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video

Video: How Couples Can Discuss Seizure Action Plans

Danielle, a person with epilepsy, and Phil, a partner of a person with epilepsy, share how couples can start meaningful conversations about Seizure Action Plans.

Open communication helps build understanding, confidence, and shared preparedness in everyday life and during emergencies.

➡️ Learn more at seizureactionplans.org

#SAPAW2026 #SeizureActionPlans

Good for: Couples, partners, people with epilepsy, caregivers

Download the video

Video: Using the Seizure Action Plan Discussion Guide

This video shows how couples can use the Seizure Action Plan Discussion Guide to start thoughtful, supportive conversations about seizure preparedness.

The guide helps turn a difficult topic into a clear, shared plan that supports communication, understanding, and readiness.

➡️ Access the discussion guide at seizureactionplans.org

#SAPAW2026 #SeizurePreparedness

Good for: Couples, partners, families, caregivers

Download the video
Wednesday, February 11th – Seizure Safety on the Go
Crowd scene showing that seizures can happen in public and preparedness helps others respond safely.

Post Option 1: Public Safety

Seizures do not only happen at home. In public settings, a person having a seizure may not be able to communicate. Medical IDs and digital Seizure Action Plans help others respond correctly.

➡️ Learn more at seizureactionplans.org and share this post.

#SAPAW2026 #SeizureActionPlans

Download the graphic
Graphic explaining that wearing a medical ID or having a digital plan helps during a seizure.

Post Option 2: Everyday Preparedness

Wearing a medical ID or keeping a digital Seizure Action Plan on your phone helps others know what to do when communication is not possible.

➡️ Explore tools at seizureactionplans.org and share this post.

#SAPAW2026 #SeizureActionPlans

Download the graphic Customize this graphic

Video: Why Stephanie Has a Seizure Action Plan

Stephanie shares why she has a Seizure Action Plan. During a seizure, she may not be able to communicate. Her plan clearly outlines what others should do, helping keep her safe and removing guesswork.

➡️ Watch, learn, and visit seizureactionplans.org. Please share this video to help spread the message.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, general audience, clinicians

Download the video

Video: Kelly R. Conner, Travel Risks

Kelly R. Conner, PhD, PA-C explains why one of the biggest travel related risks for someone with epilepsy is not having a Seizure Action Plan available.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, clinicians, general audience

Download the video
Video cover image of Jordan explaining what to do and what not to do during a seizure.

Video: Jordan — What to Do (and Not Do) During a Seizure

Jordan walks through the essential do’s and don’ts for responding to a seizure. Knowing what actions help — and which ones to avoid — can reduce the risk of injury and support a safer response in the moment.

Learn more and access seizure action plan resources at seizureactionplans.org.

#SAPAW2026 #SeizurePreparedness

Good for: General audiences, caregivers, teachers, coworkers

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video
Video cover image explaining the importance of medical ID for seizure preparedness.

Video: Medical ID, Seizure Preparedness on the Go

This video highlights how medical IDs can share critical information during an emergency and help others respond appropriately when someone cannot speak for themselves.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizurePreparedness

Good for: People with epilepsy, caregivers, first responders, general audience

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video
Video cover image explaining how to use Apple Medical ID for seizure preparedness.

Video: Apple Medical ID, Seizure Preparedness on the Go

Learn how Apple Medical ID stores important health information on your phone and why it’s a helpful part of seizure preparedness when you’re on the go.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizurePreparedness

Good for: People with epilepsy, caregivers, teens, young adults

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video
Video cover image for Teresa discussing seizure preparedness on the go.

Video: Teresa, Seizure Preparedness on the Go

Teresa shares why having seizure preparedness tools with you can help you feel more confident and prepared wherever you are.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizurePreparedness

Good for: People with epilepsy, caregivers, families, general audience

Thank you to Young Adults with Epilepsy for sharing this video.

Download the video
Thursday, February 12th – Rescue Medications - Part of your Seizure Action Plan and important Travel Tips
Graphic about rescue medication basics and how a Seizure Action Plan explains when and how to use rescue meds.

Post Option 1: Rescue Med Basics

Rescue medications can stop or shorten certain seizures, but only if others know when and how to use them. A Seizure Action Plan spells this out clearly.

➡️ Watch, learn, and visit seizureactionplans.org to feel more prepared. Pass this along to someone who should know.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, general audience

Download the graphic
Graphic about acting with confidence using clear rescue medication instructions in a Seizure Action Plan.

Post Option 2: Acting with Confidence

Clear rescue medication instructions help caregivers and school staff act quickly and confidently when every moment counts.

➡️ Watch our rescue medication demonstration video and explore practical tools at seizureactionplans.org/rescue-medication-resources.

#SAPAW2026 #SeizureActionPlans

Good for: Caregivers, school personnel, clinicians

Download the graphic

Video: Kelly R. Conner, Rescue Medications

Kelly R. Conner, PhD, PA-C reviews key considerations for rescue medications, including when to administer them, how they are given, and why it is important to document where the medication is stored so others can find it quickly in an emergency.

Rescue medications should always be kept with you. They are only helpful if they are accessible when they are needed.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, caregivers, school personnel, clinicians

Download the video
Friday, February 13th – Why I Have a Seizure Action Plan – Testimonials

Post Option 1: Peace of Mind

A Seizure Action Plan is more than a piece of paper. It is peace of mind.

When a seizure happens, many people cannot explain what they need in that moment. A plan speaks for them and helps the people nearby know exactly what to do.

Alison shares how her Seizure Action Plan reduces fear and confusion and helps avoid delays in care. Knowing others understand how to respond makes her feel safer wherever she is.

➡️ Watch, learn, and visit seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Download the video
Seizure Action Plan checklist graphic highlighting clear steps for safer seizure response.

Post Option 2: Preparedness and Confidence

A Seizure Action Plan exists because seizures do not wait for the right moment.

When communication is not possible, clear steps matter. A plan means fewer questions, less panic, and a safer response in a moment that counts.

Families, caregivers, and people with epilepsy share how having a plan helped during real-life emergencies.

➡️ Learn more or create a plan at seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Download the graphic
SUDEP awareness graphic encouraging planning and seizure safety using a Seizure Action Plan.

Post Option 3: SUDEP Awareness

Talking about SUDEP can feel overwhelming, but planning does not have to be.

A Seizure Action Plan supports a safer seizure response, clearer monitoring, and informed decision-making.

➡️ Learn more and visit seizureactionplans.org.

#SAPAW2026 #SeizureActionPlans

Download the graphic

Video: Why I Have a Seizure Action Plan

Epilepsy isn’t rare. And it isn’t always dramatic. For many people, it looks like everyday preparation.

The real risk isn’t always the seizure. It’s not knowing how to respond.

A Seizure Action Plan helps ensure people respond with care instead of panic and provides peace of mind when communication isn’t possible.

#SAPAW2026 #SeizureActionPlans

Download the video
Saturday, February 14th – Build a Plan That Works for You
Valentine’s Day themed graphic saying we love Seizure Action Plans and encouraging people to start or update a plan.

Post Option 1: Valentine’s Day

This Valentine’s Day, we’re sharing what we really love.

We ❤️ Seizure Action Plans. They take the guesswork out of seizure response when someone cannot communicate and help the people around them know exactly what to do.

➡️ Share the love. Visit seizureactionplans.org to start or update a plan.

#SAPAW2026 #SeizureActionPlans

Download the graphic
Reminder-style graphic encouraging people to create a Seizure Action Plan that fits real life.

Post Option 2: Real Life

The best Seizure Action Plan is one that fits your real life.

Work, school, dating, travel. Your plan should reflect where you go and who is around you, especially because during a seizure, you may not be able to explain what you need. A plan makes sure the right steps are already in place.

➡️ Start or customize your plan at seizureactionplans.org. Please share this post.

#SAPAW2026 #SeizureActionPlans

Good for: People with epilepsy, general audience

Download the graphic
Graphic encouraging people to review, update, and share their Seizure Action Plan.

Post Option 3: Review & Share

A Seizure Action Plan should work for you and the people around you.

Taking time to review your plan, update it when things change, and share it with caregivers or school staff helps ensure a safer response when communication is not possible. Support starts with a plan.

➡️ Review or update your plan at seizureactionplans.org and share this reminder.

#SAPAW2026 #SeizureActionPlans

Good for: Caregivers, school personnel

Download the graphic
Graphic explaining what a Seizure Action Plan includes and how it supports personalized care.

Post Option 4: Personalized Care

There is no one-size-fits-all Seizure Action Plan.

The best plan takes into account seizure types, medications, and daily routines. When a seizure happens, and the person cannot speak, a personalized plan helps others respond in the way that is right for them.

➡️ Learn more and explore planning tools at seizureactionplans.org. Please share this post.

#SAPAW2026 #SeizureActionPlans

Good for: Clinicians, caregivers

Download the graphic
Awareness Week + SAPC Logos
Seizure Action Plan Awareness Week official logo
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Seizure Action Plan Awareness Week
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Seizure Action Plan Coalition logo
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Seizure Action Plan Coalition Awareness Partner badge
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Downloadable Discussion Guide
Cover of the Sharing Your Seizure Action Plan discussion guide

Sharing Your Seizure Action Plan

When a seizure happens, the person experiencing it may not be able to communicate their needs. A Seizure Action Plan provides clear, written instructions so others know exactly what to do without delay or confusion.

This discussion guide is designed to help people living with epilepsy, caregivers, and families confidently share a Seizure Action Plan with the individuals who need to know.

Use this guide to promote understanding, improve communication, and ensure that the right people are prepared to respond when it matters most.

Note: This Discussion Guide is currently available in English only.

Download the guide
Or, fill out this form and we will email the guide to you.
Seizure Action Plans for PNES/Functional Seizures

Lorna Myers, Ph.D.

Director, Psychogenic Non-Epileptic Seizures Program
Northeast Regional Epilepsy Group

Why is emotional safety just as important as physical safety with PNES?


Download the video

Why is an SAP important for caregivers of those with PNES?


Download the video

Why do people with PNES often struggle to explain their condition—and how does a plan help?


Download the video

Why a Seizure Action Plan for PNES is different


Download the video

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Start Creating Your Seizure Action Plan!

Featured Seizure Action Plan Awareness Week Webinars

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Thank you to this year's #SAPAW2026 sponsors!

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Become an Official Awareness Partner

We are thrilled to invite all patient advocacy organizations, health care providers, hospitals/epilepsy centers and other interested parties to join the Seizure Action Plan Coalition as an Official Awareness Partner. 

Together we can ensure that everyone with epilepsy knows what a Seizure Action Plan is and how to create and use one!

We ask Awareness Partners to participate in Seizure Action Plan Awareness Week in February by actively posting content as well as engaging with content posted by the Seizure Action Plan Coalition.  

In return, awareness partners will:

– Be kept up to date on the latest developments
– Be sent the toolkit for awareness efforts
– Have their logos placed on the Seizure Action Plan Coalition website
– Be listed in Seizure Action Plan Coalition’s press releases
– Have the opportunity to submit patient stories and testimonials to be featured on the Seizure Action Plan Coalition website

We hope you will join this important effort!

Become an Awareness Partner Today
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